Many people with epilepsy want to know more: a qualitative study Introduction Key words such as choice, concordance, shared decision making are concurrently applied in the management of chronic illness in many parts of developed countries. Most patients prefer delegating treatment responsibilities to their doctors but doctors on the other hand prefer a more collaborative approach. Patients often feel in control of their lives once they have sufficient information which helps them recognize treatments and their side effects. In the 80s a qualitative research was conducted and results showed that information about the illness is lacking and people’s experience on epilepsy is vague. People had contradicting opinions about seizures and strategies of management. However in the 90s, studies were conducted using questionnaires which revealed that epileptic people lacked knowledge about the condition and instead for more information about it.
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